About Us

The ACT Down Syndrome Association is a self help organisation which was formed in 1987 by a group of interested parents.


The aims of the Association are to provide support and information to families with a member who has Down syndrome, to promote improvements in the quality of life of persons with Down syndrome and to stimulate, within the wider community, an awareness of the very real abilities and needs, of people with Down Syndrome.

Family Contact

One of the Association’s greatest concerns is that of the family with a new born baby with Down syndrome. Through our parent support contacts we provide information, support and encouragement to help these families. We encourage the parents of new babies to meet with the parents of older children, not only because of the particular information that can be passed on, but also because there can be a special kind of rapport between people who have shared the experience of having a baby with Down syndrome. Our parent support contacts are available to visit the parents of a new baby either in the hospital or in the home, wherever parents feel that they would be more comfortable to meet another parent.

Information and Resources

The Association keeps regular contact with our members through a fortnightly e-newsletter. We also run a workshop program throughout the year for those working with children with Down syndrome to learn practical strategies to support their learning and development. We have a small resource library that members can borrow from in addition to providing members with a quarterly journal published by Down Syndrome Australia.


In addition to our workshop program we also run several social activities and events throughout the year, including an awards night and a monthly confident speakers program.


The Association is committed to securing diversified funding streams through sponsorship, fundraising activities and membership contributions, as well as engaging in efficient and effective financial management to ensure our sustainability.

In 2017, the ACT Down Syndrome Association in conjunction with Down Syndrome Australia has been successful in securing an Information, Linkages and Capacity Building (ILC) Grant from the National Disability Insurance Agency (NDIA). This grant will allow ACTDSA to employ a Community Resources Officer for a 12 month period.

Objectives of the Association

  1. To provide support and information to parents and guardians of people with Down Syndrome.
  2. To ensure that parents of babies with Down syndrome have all available information to assist them during the early period of their child’s life.
  3. To stimulate interest and awareness of the community and the medical profession as to the needs and capabilities of people with Down syndrome.
  4. To bring people with like needs together by a. Organising social outings; b. Newsletters; and c. Any other means.
  5. To liaise with other interested groups in related fields.
  6. To identify the needs of people with Down syndrome, and where appropriate to represent those needs to Government and Community bodies.
  7. To promote the development of educational facilities and programs for all people with Down syndrome in ACT, including early intervention programs, appropriate ongoing education and vocational training.
  8. To encourage people with Down syndrome to develop self-confidence and self esteem.

How To Find The ACTDSA Office

SHOUT Building
Pearce Community Centre
Collett Place, Pearce
Phone: (02) 6290 0656

Email: admin@actdsa.org.au


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