Thank you for making StepUp! 2016 a success!

Thank you to everyone who helped make this year’s StepUp! for Down Syndrome a great success.

In total over $3,000 was raised through our fundraising page.We’d like to give a special mention to the wonderful fundraising efforts of Jane and Taryn (what a team!), Alicia and Kura (wow!) and Tara and Jacinta (unbelievable!).

It’s not too late to donate! We are still accepting donations through the StepUp! website.

Thanks to our organising committee Evelyn P, Alicia and Maureenfor their efforts in getting the event up and running.

Special thanks to everyone who volunteered their time to help us out on the day, in set-up and pack-down, and running food stalls, activities and entertainment. Thanks especially to Justin, David, Alan, Robyn, Amanda, Cheikh, Mark, Angie, and family and friends of the Belconnen Lions Club who acted as walk marshalls. We couldn’t have done it without you!

We would also like to thank those who supported our event by offering their services for free or at a discounted rate. This includes our wonderful friends from the Canberra Belconnen Lions Club, Anne-Marie and Lily (our talented face painters), TADACT, Libraries ACT, Dennis from Complete Entertainment, Pure Gelato, and Cafe2U.

We look forward to seeing you next year at an even bigger and better StepUp! for Down syndrome event!

Morning Tea for Young Families

SAVE THE DATE: Our next morning tea will be held on Friday, 25 November 2016, at asOne Therapy, Woden.

Our Morning Tea for Families with Young Children with Down syndrome provides interested members with a great, relaxed opportunity to meet new families or catch-up with old friends.

We have just developed a partnership with asOne Therapy who will be hosting bi-monthly morning tea/play groups at their premises in Woden. They will also be able to provide access to therapists if parents are interested in talking to them about a particular topic.

Our wonderful Rebecca, who is temporarily holding the Parent Support Coordinator, will contact our members with young children with further details as they are finalised. In the meantime, mark the date in your diaries so you keep it free to enjoy a morning tea with other members.

If you have any queries, please contact Rebecca at

Fiona McBurney Match Day Experience Wrap-up


On Saturday, 31 July, young ACTDSA member Matt Barrett took the field at Manuka Oval wearing an AFL umpire’s tracksuit and an ear-to-ear grin.

As part of the Fiona McBurney Match Day Experience provided by the AFL Umpires Association, Matt shed allegiance (for one day) to his favourite footy team (GWS Giants) and joined the match-day umpires officiating the GWS Giants v Richmond Tigers game. Read more…

StepUP! for Down syndrome – come walk with us!


 Sunday October 16th, 2016

10.00am – 1.30pm

Rond Terrace, Parkes Way

Join members and friends around Australia as we walk for Down syndrome. StepUP! for Down syndrome is part of a national event, which seeks to raise awareness and to celebrate the achievements of people with Down syndrome. Read more…